Bleeding disorders

We recommend regular reevaluations for inherited bleeding disorders:

• Mild cases: Every 1–2 years.
• Severe cases: Every 6–12 months.

Notify us if planning surgeries to discuss precautions. During follow-ups, we assess your condition, overall health, and any new medical needs. While the disorder itself doesn’t change, other health conditions may affect care. Visits often include seeing a hematologist, nurse, physical therapist, social worker, and research coordinator.

• Mild cases: No ongoing treatment is needed, but precautions are required for procedures.
• Severe cases: Preventive medication to avoid bleeding and protect muscles, organs, and joints.
• Treatments are tailored to the specific disorder and may involve self-administered medication.

For acquired bleeding disorders, we address the underlying cause or adjust medications.

• Factor replacement: Lab-made or donor blood clotting factors via injection.
• Non-factor replacement: Alternative methods to prevent or stop bleeding.

Gene therapy offers long-term solutions for hemophilia by enabling the body to produce missing clotting factors. The first approved therapy treats hemophilia B, with more under development. A single dose could potentially reduce symptoms, lessen treatment frequency, or even lead to a cure.

Treatments depend on the type and severity, including:

• Desmopressin (nasal spray/injection)
• Factor replacement therapy
• Antifibrinolytic drugs
• Hormonal contraception for heavy menstrual bleeding

Treatment depends on the missing or defective factor and may involve:

• Factor replacement therapy
• Plasma transfusions
• Medications to stabilize clots
• Platelet Function Disorders

Care includes addressing the cause of acquired disorders or using medications and platelet transfusions for inherited cases, especially before procedures.