Selected Publications

Morrisroe K, Sandorfi N, Barron M: Health Care Utilization: What Is the Cost of Caring for Scleroderma? Rheum Dis Clin North Am. 49 ((2)): 359-375,2023 .

Luebker S, Frech T, Assassi S, Skaug B, Gordon JK, Lakin K, Bernstein EJ, Luo Y, Steen VD, Shah AA, Hummers LK, Richardson C, Moore DF, Khanna D, Castelino FV, Chung L, Kapoor P, Hant FN, Shanmugam VK, VanBuren JM, Alvey J, Harding M, Shah A, Makol A, Lebiedz-Odrobina D, Thomas JK, Volkmann ER, Molitor JA, Sandorfi N: CONQUER Scleroderma: association of gastrointestinal tract symptoms in early disease with resource utilization Rheumatology (Oxford) 20:kead176 : 2023 .

Spiera R, Kuwana M, Khanna D, Hummers L, Frech TM, Stevens W, Matucci-Cerinic M, Kafaja S, Distler O, Jun JB, Levy Y, Leszcyzński P, Gordon J, Steen V, Lee EB, Jankowski T, Litinsky I, Chung L, Hsu V, Mayes M, Sandorfi N, Simms RW, Finzel S, de Vries-Bouwstra J, Constantine S, Dgetluck N, Dinh Q, Bloom BJ, Furst DE, White B, Denton CP; RESOLVE-1 Study Group: Efficacy and Safety of Lenabasum, a Cannabinoid Type 2 Receptor Agonist, in a Phase 3 Randomized Trial in Diffuse Cutaneous Systemic Sclerosis Arthritis Rheumatol. : 2023 .

Bernstein EJ, Assassi S, Castelino FV, Chung L, Correia C, Evnin LB, Frech TM, Gordon JK, Skaug BA, Hant FN, Hummers LK, Sandorfi N, Shah AA, Shanmugam VK, Steen VD, Khanna D.: Computed Tomography of the Chest to Screen for Interstitial Lung Disease in Patients With Systemic Sclerosis at Expert Scleroderma Centers in the United States ACR Open Rheumatol. : 2022.

Castelino FV, VanBuren JM, Startup E, Assassi S, Bernstein EJ, Chung L, Correia C, Evnin LB, Frech TM, Gordon JK, Hant FN, Hummers LK, Khanna D, Sandorfi N, Shah AA, Shanmugam VK, Steen V.: Baseline characteristics of systemic sclerosis patients with restrictive lung disease in a multi-center US-based longitudinal registry Int J Rheum Dis. 25 (2): 163-174,2022.

Luebker S, Frech T, Assassi A, Gordon J, Bernstein E, Steen V, Shah A, Hummers L, Richardson C, Khanna D, Castelino F, Chung L, Hant F, Shanmugam V, VanBuren J, Alvey J, Harding M, Evnin L, Sandorfi N: The Collaborative National Quality and Efficacy Registry for Scleroderma: Association of Resource Utilization and Gastrointestinal Tract Symptoms in Early Disease American College of Rheumatology Convergence Meeting : 2022.

Bosso A, Assassi S, Frech T, Gordon J, Bernstein E, Richardson C, Sandorfi N, Hummers L, Shah A, Khanna D, Chung L, Castelino1 F, Hant F, Shanmugam V, VanBuren J, Larkin A, Evnin L, Steen V: Autoantibodies in Patients with Early Systemic Sclerosis in the Collaborative National Quality and Efficacy Registry American College of Rheumatology Convergence Meeting : 2022.

Luebker S, Frech T, Assassi A, Gordon J, Bernstein E, Steen V, Shah A, Hummers L, Richardson C, Khanna D, Castelino F, Chung L, Hant F, Shanmugam V, VanBuren J, Alvey J, Harding M, Evnin L, Sandorfi N: The Collaborative National Quality and Efficacy Registry for Scleroderma: Association of Medication Use on Gastrointestinal Tract Symptoms in Early Disease American College of Rheumatology Convergence Meeting : 2022.

Saketkoo LA, Frech T, Varjú C, Domsic R, Farrell J, Gordon JK, Mihai C, Sandorfi N, Shapiro L, Poole J, Volkmann ER, Lammi M, McAnally K, Alexanderson H, Pettersson H, Hant F, Kuwana M, Shah AA, Smith V, Hsu V, Kowal-Bielecka O, Assassi S, Cutolo M, Kayser C, Shanmugam VK, Vonk MC, Fligelstone K, Baldwin N, Connolly K, Ronnow A, Toth B, Suave M, Farrington S, Bernstein EJ, Crofford LJ, Czirják L, Jensen K, Hinchclif M, Hudson M, Lammi MR, Mansour J, Morgan ND, Mendoza F, Nikpour M, Pauling J, Riemekasten G, Russell AM, Scholand MB, Seigart E, Rodriguez-Reyna TS, Hummers L, Walker U, Steen V.: A comprehensive framework for navigating patient care in systemic sclerosis: A global response to the need for improving the practice of diagnostic and preventive strategies in SSc. Best Pract Res Clin Rheumatol. 2021 Sep 15 : 2021 .

Crespo MM, Lease ED, Sole A, Sandorfi N, Snyder LD, Berry GJ, Le Pavec J, Venado AE, Cifrian JM, Goldberg H, Dilling DF, Gries C, Nair A, Willie K, Meyer KC, Shah RJ, Tokman S, Holm A, Patterson CM, McWilliams T, Shtraichman O, Bemiss B, Salgado J, Farver C, Strah H, Wassilew K, Kaza V, Howsare M, Murray M, Bhorade S, Budev M.: ISHLT consensus document on lung transplantation in patients with connective tissue disease: Part I: Epidemiology, assessment of extrapulmonary conditions, candidate evaluation, selection criteria, and pathology statements J Heart Lung Transplant S1053-2498(21)02436-0 (S1053-2498(21)02436-0): 2021 .

Academic Contact Information

3400 Spruce Street, 5 White Building
Philadelphia, PA 19104
Patient appointments: 800-789-7366