Learn about the relationship between Penn Medicine and CHOP which benefits patients with familial cardiomyopathy

The Penn Medicine-CHOP Partnership

Penn Medicine has partnered with the Children's Hospital of Philadelphia (CHOP) to create a special program for patients with inherited cardiomyopathies. Through the joint Familial Cardiomyopathy Program, teams at Penn Medicine and CHOP work together to ensure that the whole family receives the best care possible.

How the Partnership Works

CHOP to Penn

After a child is diagnosed with a cardiomyopathy at CHOP, the pediatric cardiologist may recommend that parents and, in some cases other adult family members, see an adult cardiologist at the Penn Heart and Vascular Center with Penn’s Center for Inherited Cardiac Disease.

If a cardiomyopathy is found, the team will recommend and begin appropriate treatment. If there is no evidence of a cardiomyopathy, recommendations regarding future screening will be given. As with children, in some cases, blood tests can show if family members carry gene differences that may cause cardiomyopathies.

Penn to CHOP

After an adult is diagnosed with a cardiomyopathy at Penn Medicine, the adult cardiologist may recommend that children in the family see a pediatric cardiologist at the Cardiac Center at CHOP.

If a child is found to have a cardiomyopathy, the Cardiomyopathy Program team will recommend and begin appropriate treatment. If a child shows no evidence of a cardiomyopathy, they may still need to visit the cardiologist for checkups every one to three years until adulthood, since cardiomyopathies can develop with age. In some cases, blood tests can show if family members carry gene differences that may cause cardiomyopathies..

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