If you are diagnosed with Waldenstrom macroglobulinemia, it’s important to get your care from an experienced hematologist-oncologist who can work with you to create a treatment plan, and coordinate your care throughout your entire treatment.
Below are some questions to ask your doctor about Waldenstrom’s macroglobulinemia
Questions About Your Cancer Team
- What is your experience in treating people with multiple Waldenstrom macroglobulinemia?
- Who else will be on my treatment team?
Questions About Diagnosis
- What are my white/red blood cell counts?
- What are my platelet counts?
- What are my hemoglobin levels?
- What are my IgM counts/levels?
- What other diagnostic tests will I need?
Questions About Your Treatment
- What are my treatment options?
- Where will I get my care?
- What are the treatment side effects?
- Are there any complications from treatment?
- Will I need a bone marrow or stem cell transplant?
- Will treatment for Waldenstrom macroglobulinemia affect my ability to have children?
- If so, are there fertility preservation options?
- What are the expected outcomes form my treatment?
- What is the prognosis for relapse?
- Am I eligible for a clinical trial?
- What support resources are available to me?
- Are there any complementary therapies I can do while receiving cancer treatment?
Questions About Second Opinions
Hematologist-oncologists at the Abramson Cancer Center can provide you with a second opinion.
For a second opinion, call 800-789-7366 (PENN).
In addition to the questions above, here are some questions you may want to ask if you are getting a second opinion:
- What labs/test results will I need to get a second opinion?
- Can you help coordinate my care close to home?
- How will you work with my primary care physician and/or care team?