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Questions to Ask About CLL

If you are diagnosed with Waldenstrom macroglobulinemia, it’s important to get your care from an experienced hematologist-oncologist who can work with you to create a treatment plan, and coordinate your care throughout your entire treatment.

Below are some questions to ask your doctor about Waldenstrom’s macroglobulinemia

Questions About Your Cancer Team

  • What is your experience in treating people with multiple Waldenstrom macroglobulinemia?
  • Who else will be on my treatment team?

Questions About Diagnosis

  • What are my white/red blood cell counts?
  • What are my platelet counts?
  • What are my hemoglobin levels?
  • What are my IgM counts/levels?
  • What other diagnostic tests will I need?

Questions About Your Treatment

  • What are my treatment options?
  • Where will I get my care?
  • What are the treatment side effects?
    • Long-term
    • Short-term
  • Are there any complications from treatment?
  • Will I need a bone marrow or stem cell transplant?
  • Will treatment for Waldenstrom macroglobulinemia affect my ability to have children?
    • If so, are there fertility preservation options?
  • What are the expected outcomes form my treatment?
  • What is the prognosis for relapse?
  • Am I eligible for a clinical trial?
  • What support resources are available to me?
  • Are there any complementary therapies I can do while receiving cancer treatment?

Questions About Second Opinions

Hematologist-oncologists at the Abramson Cancer Center can provide you with a second opinion.

For a second opinion, call 800-789-7366 (PENN).

In addition to the questions above, here are some questions you may want to ask if you are getting a second opinion:

  • What labs/test results will I need to get a second opinion?
  • Can you help coordinate my care close to home?
  • How will you work with my primary care physician and/or care team?