ALS Clinic at the Penn Medicine Neuroscience Center
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Managing ALS Teleconferences
The ALS Association, Greater Philadelphia Chapter began an innovative program in the fall and winter of 2004, offering telephone conferences for a variety of topics about symptom management of amyotrophic lateral sclerosis (ALS). These teleconferences were offered free of charge to persons with ALS and their families. The first teleconference featured Leo McCluskey, MD, Medical Director of the ALS Center at Pennsylvania Hospital and Gail Houseman, Nurse Coordinator for the ALS Association.

The conference addressed what ALS is and how to manage the symptoms related to the disease. The second teleconference, led by Linda Baird Jansen, PT from the Penn State- Hershey ALS Clinic, discussed physical therapy and wheelchair issues. The third teleconference was hosted by Jennifer Klapper, Mental Health Counselor at the ALS Association, and Carol Van Story, Social Worker in north-central Pennsylvania, and featured a discussion on decision making and ALS.

Teleconferences are scheduled several times throughout the year. Please contact The ALS Association at 215-643-5434 for information about upcoming teleconferences.

Resource Groups Available
ALS Resource Groups meet throughout the region to provide a forum for patients, families and caregivers to exchange experiences, resources and ideas. Groups specifically for caregiver and bereavement support are also available. All resource groups are free of charge for patients, caregivers and family members.

Click here for a full schedule of groups >>

 

 

 

 


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